M.E awareness day 2013.

So two years ago I wrote an article on what my life had become since I got severe m.e in 2011. I couldn't walk around my house, I had to crawl everywhere. When i could walk I used a zimmer frame for months in order to get around. Whenever I left the house, even to walk up my road I was in my wheelchair. I lost a lot of friends and became quite isolated with my family being my mail support system, and sometimes the only people I would see for days or weeks.

Two years on and I am so much better, and have achieved so much. Yet I'm still ill. I can walk outside now, I pick my sister up from school by myself and when I go out I don't need my wheeclahir, unless I'm out a long time without places to sit down as my legs are still week.

To other people my age I don't have such an amazing life, I can got out with my friend but can't go partying, I can't drink alcohol, I can't go to school or college, I can't really do the normal things a nearly 18 year old would do.

But I don't really mind. I can go to the cinema, I can go out for a meal, I can go shopping with my mum in my wheelchair, I can be out for a couple of hours at a time, I can go on my sewing machine, I can read a book, I can do an online course, I can go on holiday to Wales.

It's not about what I can't do but about how many things I now can do. Its about making the most out my circumstances and appreciating the little things. I feel so lucky to just be where I am today. So many of my friends are still so poorly, and it's not getting that much better.

A lot of people don't believe in m.e and don't take it seriously. I for one haven't had that mnay bad experiences with people, but from the one or two I have had I know just how  horrible it can be. That's why I'm writing this to try and raise some awareness  If I help one person realise how serious, debilitating, long term this illness can be then I will be very grateful!

Thank you for reading and I hope this helps you understand a bit about m.e.

Sophie xxxx

This is my article I wrote two years ago..
http://www.wirralnews.co.uk/wirral-news/local-wirral-news/2011/05/04/wirral-teenager-tells-of-her-me-struggle-to-mark-awareness-week-80491-28626563/

Independence strikes again!!

5th April 2013- Went to the beach with Rach today, flew a kite, walked round the arcades, went on a ride and went on the beach all without my wheelchair and by ourselves without parents for most of it. Which may not seem like a big deal but it so is for me!! I felt like I was having a normal day out with my friend, and that I was just a normal teenager having fun without needing anyone to depend on to help me get around or do anything. Such a great day!!

I love independence so much. 

Sophie xxxx

Off to the Ballet

3rd May 2013- Tonight we went to see Sleeping Beauty the ballet! Even though I went to the Empire Theatre last week I'm classing this as an achievement because I've never been to the ballet before. It was really magical, the dancers were just amazing and the set and costumes were ridiculously amazing!

Overall a pretty amazing night!!

Sophie xxxx